Chatter
in a nutshell, here is the discussion, abbreviated.
last night as i sat in my daughter’s ceramics, an acquaintance mentioned how horrible it is to be gluten free in this world. a friend of hers, her daughter, was dx as celiac and said how much this dx has messed up her family and caused her much distress over the fact that she needs to prepare ‘special food’ for her daughter. i mentioned something about us being gluten free and she asked if i was celiac. i told her no, my son is type one. she proceeded to tell me that her brother is type one (he’s 50). then she let loose about how her brother got type 1 from too much sugar and juice and all the foods her mother fed them (dx at 8). he was also the skinny one and she was far from it. the story is typical, he does not eat healthy, exercise or take the best care of himself. that is why he is on the pump, the pump does it all for him.
another lady turned and said her husband is type 1, dx at 18 when they met (47 now). he does not take care of himself either. he eats almost all his food at night, does not exercise and gets very low, often. he went on the pump several months ago. she wishes he took better care of himself but it is a touchy subject between them.
ok, 3 people with type one families in the room of 4 families that day, including me. i don’t need to tell you, there was even more in the conversations.
i was asked a lot of questions. they were amazed that the kids and i all follow the same way of eating as tyler. they felt it must be tough being dx as a teen. it was also commented on how my kids must be missing out on ‘real life’.
one of the ladies told me that by the way we are working with tyler, then, perhaps, it will keep him from going blind, loose a limb, kidneys or worse.... all within earshot of my daughter. she kept looking back at me, giving me the look of ‘are these people for real’
after ceramics, we ate out before we headed over to our 4 H meeting where pizza, cupcakes and juice were being served. one of my kids said, i am glad we ate first and i cannot wait to have our yummy chocolate chip cookies when we get home!
I'm just simply sorry you had to go through that. I'm picturing you sitting there, trapped with no escape.
ReplyDeleteNow I'm hankering for some gluten free choc chip cookies! Yum!
Welll...we're gluten free and we've adapted just fine? No marital discourse/homewrecking happening in this joint.
ReplyDeleteAnd...as for the "noncompliance"...I'd like to know how compliant with a "healthy lifestyle" THEY were.
These peeps make me mad.
PS -- And, btw, I'd like the name of that pump that does it all.
man I cant believe you were trapped with no where to go! THAT stinks.. Im so sorry these people had this kind of attitude.. I often wonder when parents say I could never do that for my kid.. REALLY you couldnt keep your kid alive?? That is all Im doing... This for sure falls under the I MEAN REALLY...
ReplyDeleteThis whole interaction saddens me. These are people that have type 1's in their family and even they don't understand! It goes to show us how much "work" we have ahead of us in graciously educating and/or ignoring idiots.
ReplyDeleteLove to you Alix!
That sounds horrible - I am so sorry you had to sit through that!!
ReplyDeleteBut can you get the name of that pump that does it all - totally want one of those! :)
Oh my! You poor thing. Very interesting that there were so many T1D families in one room! I've only came across on person since Maddy's dx. Anyway, you have a lot of patience I would have hurt someone! LOL
ReplyDeleteHi, I came across the link to your blog on DiabetesMine, I can so relate to your stories. My son (now 8) was dx at age 4 and started pumping a month later, and I really have to bite my tongue when well-meaning people tell me about so-and-so that they know who doesn't have to take any insulin because they eat right and exercise. Well gee, is that all I have to do??!! Sheesh. That makes me very sad, too, to know that families don't all change their eating habits when a family member is diagnosed, that seems so unfair. We all converted to diet and low carb as soon as Zach was diagnosed, we want him to know we're in this together and that he's not alone. We also tell him that our whole family eats healthier as a result, but we still wish he didn't have to live with this disease. Be patient with the pump, Zach's A1C hasn't been over 6.8 since he was first diagnosed, it has allowed us to have really tight control. I'm an RN, but I wish I was a nutritionist! Maybe I deserve an honorary degree at this point, though. I haven't specifically started a diabetes blog, but my family blog is 4seedlings.blogspot.com, if you want to drop by. I have to warn you that I'm a bit middle of the road when it comes to diet, everything in moderation (so don't cringe when you see my pan cookie recipe...I try to time dessert with physical activity so they can burn it off). But, we don't drink our calories, that's for sure. You sound like you're doing an awesome job, and I'd love that gluten-free cookie recipe, I guess I'll see if you posted the recipe. Keep the faith, you're not alone!
ReplyDelete