it has been a bit over 48 hours now that tyler has been on the pump. we have had issues since the beginning. not that this will deter us, but issues none the less.
we arrived at the training and the nurse asked tyler to put on the infusion set. as soon as he began, she said he was doing it wrong and he needs to do it her way. we explained that this is how the medtronic rep had us do this when we were trying it and how the trainer explained it to us when we did the week of saline prior to class. she said she never heard of it before and she was a rep before... well, the way she wanted to have tyler insert the infusion set didn't seem as natural to him and we asked if we could do it the way we were comfortable, no she said.
as we were sitting in class, kids were dropping low and adjustments were made. tyler kept climbing and no adjustments were made. as kids were getting low all day, tyler's numbers remained high. we were told the numbers just needed to be adjusted until we found the correct dosage. he dropped a bit (but still high) that night, but then climbed again.
the next day (friday) his numbers were still running high, even hours after heavy exercise. we called the office and they suggested a small adjustment, assuring us higher numbers can be normal in the beginning.
tyler felt crummy all day yesterday, high numbers even with adjustments, no ketones. we decided in the evening to change his site, a day early. we noticed that his shirts smelled heavily of insulin. when we removed the site, the thingy that goes in him was bent and kinked..... answer: the initial insertion was bad... sometimes when we are learning something new and we have found a way that works for us, we should not try something new until we have mastered what we are doing. the nurse did not understand this.
after we changed the site, tyler started to feel better within a few hours. his number were nice last night. he looks and feels much better today.
tyler has mentioned that the new site is sensitive and hurts a bit, perhaps it is near a nerve. i told him we could change the site if he wants...
let's pray the next 48 hours goes a whole lot smoother.
our next class is thursday....
I'm sorry you guys have had a rough first two days. We were very lucky to have great training and great support when we went to the pump. Don't give up yet...hang in there. And, yeah, bend/clogged canula's can be a pain! Let me know if I can help in any way :) - Mo
ReplyDeleteThat nurse sounds frickin' annoying. I hope that the next few days go smoother! And...keep up the great work you guys!
ReplyDeleteSometimes know it alls don't know crap! You tried it her way... didnt work... now stick to what you know.
ReplyDeleteI am sure things will go much better as you get use to everything. Change is always hard,
Me no likey that nurse. PHOOEY ON HER! Blah!!!
ReplyDeleteSo proud of you guys for hanging in there. Sugar complained of some burning during infusion in the beginning...we slowed the rate of infusion a bit and she never complained again. It was a long time ago, though.
HANG TOUGH! You're doing great!
One day at a time. I'm glad that you will not be detered! You are doing great...just keep swimming!
ReplyDeleteHere is to a MUCH better 48 hours!
Hang in there Alix. It is a bit overwhelming at first, but I'm certain that you'll be very happy that you decided to start pumping in no time.
ReplyDelete